The health and care champion group has identified 15 key areas where it is taking forward work, which cover the 14 actions published in the Prime Minister’s dementia challenge, plus some additional areas that are crucial to people with dementia and their carers.
To deliver the actions, the group are working directly with people with dementia and their carers, professional bodies and the voluntary sector to coproduce an action plan.
The group would also like to gather people’s views on how health and care for people with dementia and their carers could be improved. The comments that people make will help inform the work of the champion group. Have your say.
These are the key areas that the group is focusing on:
Improving diagnosis rates
The National Dementia Strategy identifies the central role that diagnosis plays in the quality of care that people receive and diagnosis rates need to increase.
Better care in all settings
Dementia care is not only about delivering specific services designed for people with dementia but about ensuring that the range of health and care services in different settings are ‘dementia friendly’ and make reasonable adjustments to ensure people with dementia receive high quality services.
Support for carers and families
The impact of supporting a person with dementia cannot be underestimated.
A wider approach to information – a personalised information service that leads to the ‘no wrong door’ approach for people and families
The aim is for people of all ages with dementia and their family carers get an early diagnosis and the best advice and information or are signposted to the right point of access, no matter who they contact. Information is central to the personal care and treatment package and underpins the approach of ‘no decision about me, without me’.
Commissioning an enlightened health and social care workforce
This involves developing the whole health and social care workforce (in the statutory, third and independent sectors) to be positive, have the right level of expertise for their role, deliver excellent standards of care and have the confidence to involve people and families in designing care and support.
Reducing the inappropriate use of antipsychotic medication for people with dementia
The group aims to champion the ‘Call 2 Action’ co-ordinated by the NHS Institute to reduce prescriptions of antipsychotics to people with dementia and promote alternatives to allow them to live well in their home, including in care homes. The goal is for all people with dementia who are prescribed antipsychotic drugs to have a review of their medication.
Improving people’s living environment
Working with housing providers and care homes, and developing innovative solutions to help people stay at home are vital to helping individuals, couples and families living with dementia to stay together with the right level of personalised support.
Improve access to re-ablement and intermediate care services
People with dementia must have the same access to social care re-ablement services and health intermediate care services after a stay in hospital or to prevent admission.
A dignified death – end of life care for people with dementia
Everyone diagnosed with dementia will die with the condition and we know that access to high quality personalised end of life care for people with dementia is variable across the country.
The cultural and implementation challenge across the country
Varying practice in prioritising, diagnosing and caring for people with dementia exists among some groups so, alongside the specific actions such as diagnosis plans and hospital commissioning for quality and innovation (CQUIN), we need to understand the wider adoption and implementation context.
Develop a clear vision of what excellent health and care for people with dementia looks like
The National Dementia Strategy has used a series of statements about what people should expect, to communicate its ambition and vision. We have an opportunity to review and refresh these to provide a core summary of the high level ambition to transform the experience of people with dementia and their carers.
Develop integrated local performance management systems, monitored through Health and Wellbeing Boards and transparent to local citizens
Health and Wellbeing Boards provide a new and substantial opportunity to prioritise the needs of people with dementia – agreeing joint health and social care outcomes, monitoring frameworks locally and championing quality and an improved experience.
Building understanding and capacity about commissioning services for people with dementia in Clinical Commissioning Groups
CCGs will commission most of the health services that people with dementia will receive. We will identify ways to support CCGs to build up their capacity and capability to commission effectively. This may require a different model to that being developed in other clinical networks.
Develop a clear view about integrated working between health and local government
Develop a central theme in the workplan on health and social care, to understand what these elements mean for people with dementia. This needs to start with joint commissioning – joint between health and social care but also joint between people with dementia and their carers and the formal commissioners based on personalised care, including personal budgets where appropriate.
A communication and engagement plan
Co-ordinate communications and engagement work to maximum effect, managing input from No 10, Department of Health ministers and champion group members. This will be based on the revised vision and engagement with stakeholders.
The group will report to the Prime Minister this Autumn.